SCCM Resource Library-How to Create Multicenter Research Registries

Video Transcription

Video Summary

The webcast discusses the process of creating a multi-center research registry, using the example of the VIRUS COVID-19 registry. The registry was formed in response to the COVID-19 pandemic and aimed to collect data on patients with COVID-19 to understand epidemiology, natural history, practice variation, and quality of care. The registry was made possible through the support of the Society of Critical Care Medicine Discovery Network. The process of creating the registry involved developing a clear vision and goals, assembling a diverse team of experts, reaching out to sites to participate, addressing regulatory issues, creating infrastructure for data collection and storage, and establishing logistics for ongoing communication and maintenance of the registry. The registry used REDCap as the data entry software and had a dashboard to provide real-time information on the current state of COVID-19 in ICUs and the progress of the registry. The data collected in the registry was used for research, quality improvement initiatives, and preliminary effectiveness studies. The registry faced challenges in obtaining site participation and ensuring consistent data entry, but the successful creation of the VIRUS COVID-19 registry demonstrates the value and potential of multi-center research registries in advancing knowledge and improving patient care.

Asset Subtitle

Research, 2022

Asset Caption

The creation of a multicenter registry to facilitate rapid data aggregation in response to COVID-19 has been shown to effectively disseminate real-world experience and generate hypotheses to inform larger trials. The benefits of this mechanism of learning more about diagnostics and identifying potential therapeutics are not limited to COVID-19. This webcast will introduce the organization and creation of multicenter registries and key lessons learned from COVID-19 that could potentially be used not only for future health crises, but also to improve coordination for routine critical illness research. Topics include coordination and logistics, data dictionaries across heterogeneous institutions, and legal implications.

Meta Tag

Content Type Webcast

Knowledge Area Research

Knowledge Level Intermediate

Knowledge Level Advanced

Membership Level Select

Membership Level Professional

Tag Research

Year 2022

Keywords

multi-center research registry

VIRUS COVID-19 registry

COVID-19 pandemic

epidemiology

data collection and storage

REDCap

dashboard

ICUs

improving patient care

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